The Adviceline provides information, support and education to people with asthma and their parents/carers. The free and confidential service provided by a specialised asthma nurse provides advice on a range of topics, including managing asthma symptoms, setting up an asthma action plan and accessing services and support for caring for… Read More
Free confidential Advice Line service provides support and information for people living with lung disease, heart disease and stroke. In addition we give advice to families, carers, and health and social care professionals across Scotland. Specialist Advice Line nurses provide a supportive listening ear, together with health advice based on… Read More
The helpline provides a range of general disability related information to disabled people, carers, professionals, disability organisations and anyone with an interest in disability issues. The helpline can deal with issues including benefit enquiries, employment, discrimination cases, equipment, grants and trusts, access, holiday information and signpost to local sources of… Read More
Information, advice and guidance for people with Down’s syndrome, their families and carers and the professionals who provide support. The service deals with all aspects of living with Down’s syndrome and includes education, social care, health and welfare benefits. Wide range of resources can also be accessed online.
Helpline providing information, help and emotional support to people affected by epilepsy. This help extends to friends, family, work colleagues, professionals for e.g social workers, GP’s, nurses, teachers, care workers and employers. Topics discussed can include causes, diagnosis, symptoms, different types of epilepsy including medication, children with epilepsy, driving, seizure… Read More
Healthwatch Essex provides an Information Service to help people across Essex access, understand and navigate the health and social care system. The service is independent of the NHS and Social Care Services. Can help with information on topics including GP registration, accessing social care, concerns about care quality, finding local… Read More
Provide legal information and general advice on mental health related law covering mental health, mental capacity, community care and human rights and discrimination/equality related to mental health issues.
The MND Connect helpline offers people access to help and advice, practical and emotional support and direction to other services and agencies. The service is for people living with MND, carers, family members, health and social care professionals and MND Association staff and volunteers. The helpline team can provide information… Read More
The MND Association benefits advice service provides advice by phone and e-mail in England, Wales and Northern Ireland, it also provides advice via web chat in England and Wales. Qualified advisers will help identify the benefits you may be able to claim and work out the best way of claiming… Read More
Free, confidential information on benefit/tax credit entitlement, child maintenance, contact problems, legal issues, housing options, employment, education, childcare. The helpline is available to any lone parent or organisation that works with lone parents in Scotland. Local projects in Dundee, Glasgow, North Lanarkshire and Maddiston, near Falkirk. Flexible Childcare Services in… Read More
The helpline and information service offers a listening ear, advice, information, practical and emotional support to people living with Progressive Supranuclear Palsy (PSP) and the related disease Cortico Basal Degeneration (CBD), and those who care for them. Can help with accessing services, rights to an assessment and planning a holiday…. Read More
Confidential nurse helpline run by an NHS nurse with sarcoidosis. The helpline can provide patients with information and support about the condition, especially if recently diagnosed. Callers may also be signposted to relevant organisations for further support. Anyone affected by sarcoidosis is welcome to schedule a call, including friends, family… Read More
Well Aware’s helpline exists for people who do not have access to the internet in order to signpost them to all types of support in health, wellbeing and community services. This includes resources related to disabilities, rare syndromes, emotional support needs, practice and social support.
Represents people who are deaf or hard of hearing. Offers free confidential and impartial information and a range of services and support on all aspects of deafness, hearing loss and tinnitus. Encourages people to protect their hearing and take action to get their hearing checked. Services include information, factsheets and… Read More
Provide support and information for people with tinnitus through our Tinnitus Information Line, website, factsheets and leaflets. Can also provide information for health professionals on managing patients who have tinnitus. Calls are free from landlines and mobile phones within the UK and do not appear on itemised bills.
Helpline offers advice, information, signposting and a listening ear for people who suffer from Ataxia. Provides information through the website, run annual conferences and supports a national network of Branches and Support Groups. Funds research and raises awareness of ataxia.
Telephone support and information for people with Behcet’s disease, a chronic condition causing inflammation of smaller blood vessels. The helpline is run by volunteers and the answerphones may be used at certain times. Callers who leave a message are contacted as soon as possible. Please note that the Team do… Read More
Offers information and support for people with brain and spine conditions and their families, through a helpline, website and publications. The helpline is run by neuroscience nurses who can answer questions and provide emotional support. The Team can talk through any neurological symptom, investigation or condition, even if it is… Read More
Provide information advice and support to families with disabled children no matter what their condition or disability. Freephone helpline for parents and carers with advice on welfare rights, community care issues, education needs, debt and a listening ear, with access to interpreters. Advice service for special educational needs (SEN). Link… Read More
Confidential British Sign Language Advice Helpline. Appointments to speak to a confidential advisor can be made via the website and conducted on Skype/FaceTime. The Team can assist with issues including welfare benefits, housing, debt, employment, consumer and community care, access to Council services, advice on access to legal services to… Read More
Helpline for anyone concerned with dyspraxia, the condition of developmental co-ordination disorders. Provide advice on diagnosis and treatment. Self-help groups across the UK. Raise awareness with health and education professionals.
Helpline offering information and personal, confidential advice about epilepsy. Welcomes enquiries from anyone with an interest in epilepsy, including professionals. Has online learning resources and an online self-management course. Local groups offer support.
Caller led confidential helpline for people with epilepsy and for their families, carers and health professionals. Provides information, emotional support, informal counselling and signposting to other agencies as well as information about assessment, treatment, rehabilitation, long-term care and respite care for adults with epilepsy.
Offers support and information to people with fibromyalgia, their family, carers and professionals. Provides a listening ear, information on symptoms and possible treatments. The Benefits Helpline provides advice and information on all aspects of DWP benefits for people with fibromyalgia.
UK wide charity that works to improve life after brain injury. Provides support, services and information to brain injury survivors, their families and carers, as well as to professionals in the health and legal fields. Support includes a freephone nurse-led helpline, emergency fund to assist with the financial implications following… Read More
Support disabled people both in the UK and in more than 50 other countries. Help people with physical impairments, learning difficulties and long-term health conditions, as well as their carers, friends and families. Run a customer helpline on 0808 808 2236. Services include accommodation (supported living, registered care homes and… Read More
Helpline providing free information, guidance and advice to anyone affected by central vision loss, including friends and family members. The Team can answer questions and provide information and advice about any aspect of living with macular disease but are unable to give medical advice. All calls are confidential. Calls cost… Read More
Confidential nurse-led helpline is available to anyone who is looking for information or support on meningitis, meningococcal septicaemia and the after effects. Support also extends to family, friends, carers and professionals. The helpline team can also provide information on home visits, counselling, creative therapies, financial support and peer support events.
Provides information and support to anyone affected by Multiple Sclerosis. Services include a free information helpline via online web chat or on freephone 0800 783 0518; national telephone counselling service to those with MS; free welfare and benefits advice, bi-monthly publication entitled ‘New Pathways’ and a wide range of single… Read More
Confidential service offering emotional support and up-to-date, evidence-based information to anyone affected by MS covering symptoms, diagnosis, treatments, benefits, health and social care, complementary therapies, employment, discrimination and research. Online forums to talk to others with MS. Information resources available to download free of charge from the website.
Confidential Enquiry Service providing information for anyone with or affected by multiple sclerosis, including family, friends and carers. Can help with issues including recent diagnosis, symptoms, treatment options and signposting to MS specialist health professionals. Website contains information about the whole spectrum of MS. Further support includes quarterly newsletter, books… Read More
Provide free information and emotional support for people and families affected by muscle-wasting conditions. If the Team are unable to help they will signpost to further services. Further support includes advocacy service, online forum, peer to peer support network, and regional community groups. Website has information on conditions, practical advice… Read More
Helpline for parents and carers of deaf children, deaf young people and professionals giving information on childhood deafness. Issues covered include audiology, benefits, education, choice of school, statements, equipment, hearing aids and glue ear. Audiologist, technology loan service, free publications. Information weekends away for parents.
Provides information and support for people who live with persistent pain. The helpline is staffed by trained volunteers who provide information, support or a listening ear to people wanting to talk about their own pain or that of a family member or friend. The helpline can also help with developing… Read More
Support Line staffed by pancreatic cancer specialist nurses providing information and support for anyone affected by pancreatic cancer including families and carers. The nurses can provide individual specialist information about pancreatic cancer, treatment options and managing symptoms and side effects. The Team can also listen to your concerns and provide… Read More
Our expert nurses and helpline advisors are able to offer impartial information and signposting about all aspects of Parkinson’s and the work of Parkinson’s UK. We have a network of local support workers across England, Scotland, Wales and Northern Ireland who can offer support and signposting to local services.
Helpline providing emotional support and information for people with retinitis pigmentosa and associated retinal dystrophies (progressive, inherited sight loss). The helpline is staffed by a team of volunteers who themselves have RP. Further support includes network of local groups, outreach officer and a telephone befriending service. Provides a young people’s… Read More
National helpline offering free, independent and impartial information and support on the issues that matter to disabled people and families. Also offer a telephone interpreting service to people whose preferred language is not English. Scope helpline staff members are not qualified to give medical or legal advice. The Team are… Read More
National charity working for all those whose lives are affected by childhood lower limb conditions. Provide practical and emotional support through the helpline, online community and family contact service offering a safe place to share concerns. All publications medically checked by orthopaedic consultants and available to download from the website…. Read More
Stroke helpline and written enquiry service for anyone affected by stroke. This includes stroke survivors, family members, carers, relatives and professionals. Offer a listening ear, support, guidance and information on a wide range of stroke related topics. Can signpost to Stroke Association Life After Stroke services, local stroke clubs and… Read More
The Support and Info Line offers a confidential way to ask questions or raise concerns about a diagnosis, treatments and how a brain tumour may affect daily life. Calls to the support line are free from landlines and most mobiles. Able to guide people through the signs and symptoms of… Read More
Confidential helpline providing information and support for people who stammer on any issues concerning stammering. The helpline is run by people who stammer, student and qualified speech and language therapists and others with an understanding of stammering. Open to children aged 14 and upwards, adults, families and friends as well… Read More
EDS UK freephone helpline provides advice, information, and support to people with EDS, family members, friends, and medical professionals all around the UK. The helpline is run by Mya who has a post graduate diploma in Genetic counselling and has co-ordinated various genetic research studies. Mya is happy to answer… Read More
The ME Connect helpline provides support for people with ME (myalgic encephalopathy) and CFS (chronic fatigue syndrome) and those who live with or care for them. Further support includes signposting to local and national services.
Provide a listening ear and emotional support for people born with a heart condition (congenital). A congenital heart condition is an abnormality of the heart that has been present from birth. The helpline can provide information, literature and details of recognised specialist GUCH Centres and/or signpost to other organisations for… Read More
A multi-channel Helpline providing information and advice about arthritis in one place to make it easier to access and as useful as possible for everyone affected by the condition. Supported by medical research and informed by the experiences of people with arthritis, the Helpline Team offer information, tips and advice,… Read More