Tuberous Sclerosis Association

Description of service

The Tuberous Sclerosis Association (TSA) offers the free and confidential TSA Support Line for professional and friendly advice on a wide range of TSC-related subjects, such as taking first steps following a recent diagnosis, accessing emotional support during a tough period, or securing a referral from a GP to an NHS TSC clinic. The TSA Support Line is also available for those in the TSC community who simply need a listening ear, or someone to speak with at times of TSC-related stress and hardship. Further support includes signposting to specialist and local services when additional expert support is needed. The TSA’s support team is unable to offer advice or information on legal issues. A translation service is available to support those for whom English is not their first language. Webchat through the TSA website is planned for launch in the near future.

Key Focus

Support and information for everyone in the Tuberous Sclerosis Complex (TSC) community

Age Range

All ages

Opening Times

Monday to Friday, 9am-5pm

Area Of Operation

Whole of UK


No charge

Referral Method

Self referral

Registered Charity Number