Description of service

Confidential nurse helpline run by an NHS nurse with sarcoidosis. The helpline can provide patients with information and support about the condition, especially if recently diagnosed. Callers may also be signposted to relevant organisations for further support. Anyone affected by sarcoidosis is welcome to schedule a call, including friends, family and care givers. To schedule a call please fill in the website form or call 020 3389 7221. Average call back time is 4 days. Further support from SarcoidosisUK includes private online forum, support groups, befriending service and online benefits information.

Key Focus

Support, information and signposting for those affected by sarcoidosis

Age Range

All ages

Opening Times

Tuesday 5-7pm*
Wednesday 5pm-7pm
Thursday 5-7pm* * depending on call demand

Area Of Operation

Whole of UK


No charge

Referral Method

Self referral

Registered Charity Number