Prader-Willi Syndrome Association UKhttps://www.pwsa.co.uk
Description of service
National charity supporting those affected by Prader-Willi Syndrome, including families, professionals in health, education, social services and residential care, and people with PWS. Services include support and advice by telephone, website and social media, regional family events, national conference and training for professionals. Also run a residential care forum three times a year for professionals working in the field, and occasional information days for parents.