PBC Foundation

Description of service

Provides support and information to people affected by autoimmune liver disease Primary Biliary Cholangitis (PBC), their families, carers, health professionals and friends. The helpline is manned 24 hours a day, 365 days a year and has been used by those suspecting they may have PBC and are looking for assistance in diagnosis, newly diagnosed patients looking for information, carers looking for support, Foundation members whose PBC has progressed or changed and also family members who have a loved one going through end stage liver disease looking for support and also practical information at a most difficult time. Host a wide range of events which include members’ meetings, self-management sessions and medical conferences.

Key Focus

Support for people suffering with Primary Billiary Cholangitis

Age Range

All ages

Opening Times

Helpline 24 hours

Area Of Operation

Whole of UK, International


No charge, free membership

Referral Method

Self referral

Registered Charity Number